Florie's Fight Against Rett Syndrome
Rett Syndrome Fundraising
Zumbathon for Rett UK - 23rd June 2012
2 hours of Zumba with over
£2409 raised for Rett UK
Westfield School Mini Marathon
28th September 2012
Westfield Primary School, Hoddesdon (at the time Flories brother's attended here) held a mni marathon for Rett Uk to show their support to us as a family
The kids enjoyed it and just under £200 was raised
Charity Quiz Night for Rett UK
24th November 2012
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​Barbara De'Ath, (Flories nan) put on a Quiz night. It was a great success.
Florie's Spring Ball
​For Reverse Rett and Florie's Fund
​23rd March 2013
178 guest arrived, all glam and ready to party.
A 3 course meal was served while Neil Gordon sang songs from Rat Pack.
The night continued with entertainment from a Blue Band and a Disco.
An Auction and Raffle was pulled, where amazing prizes were won, From Golf, to pamper sessions and even Holidays!
A Whooping £9120.14 was raised from this evening.
We donated £6384.10 to Reverse Rett and the rest went to Florie's Fund.
Flories Pamper Day - 8th August 2013
Raising money for Florie's Fund with a Donatino to Cure Rett
Lucie Channon, Florie's Aunt arranged a pamper day, involving Funky Tips Salon of Hoddesdon where Lucie works.
Therapists gave up their sunday to perform treatments such as Polish and Colour, Eyebrow wax, tint , Massage plus lots more.
In the main hall was a Table Top sale selling clothes, Fashion, Health products and other beauty and Health related items.
It was a brilliant afternoon with lots of satisfied clients and customers
£1000 was raised at this event with £200 going to Cure Rett.
Survival of the Fittest 16th Nov 2013
A 10k Urban Obstacle course arrange by Mens Health Magazine.
It is held every year around the UK, so we decided to get a Team together.
We called ourselves 'Florie's Fighters' and ended up as a team of 20.
It was a amazing day, but was really hard work, nether the less. We are going in for the 2014 race.
Our team got sponsers and donation and between us we raise a massive £9356.54.
We was able to donate £4000 to Cure Rett.
Barn Dance - 25th October 2013
Barbara arranged a Barn Dance, She decided to try something a little different as you can see we have kept things varied.
I attended this event and I have never laughed so much, it was so much fun!
Everyone turned up in their best 'Barn Dance' Attire and Do-C-Doed through the night.
It was a success as usual and we have people asking when the next Barn dance is.
£610.10 was raised for Florie's fund
Florie's Fayre - 8th December 2013
We decided to hold a small Christmas Fayre in our local Village.
Florie has lots of toys that she is unable to play with so we decided to sell these on and put hte money back into her fund.
we had 17 stalls seeling a mixture of things from 2nd hand toys, clothes and bric and brac to small business selling jams and Chutneys, Aloe Vera Products, Hair Bands and more.
It was a quiet, small event. but we managed to raise £700 with the help of the Big Give challenge where we doubles our money. This went to Reverse Rett.
Please take a look at the 'Get Involved' Page to see future events!
Reverse Rett 5x50 Challenge
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September 2012 for 50 days
Adam and his brother Neil had to endure 5k for 50days solid either walk, run or by bike.
All to raise money for Reverse Rett (RSRT UK)
Adam and brother Neil raised £1106 between them while Team Reverse Rett added their sponsers to make a whopping 21 grand!
Clairvoyant Night for Rett UK
​29th september 2012
Nicole Ulatowski (Flories auntie) held a clarevoyant night.
Over £500 was made as this unique evening.
We gratefully recieved cakes made by our supporters, these were sold with Tea and Coffees and Raffle prizes were won. Making it another successful eveninh.
It was enjoyed by all.